Day ten of the blogging challenge asks, “What do you want others to know the most about your life with EDS?”
You know I’m not sure what is the most important thing to know but there are a few things I want the people around me to understand. For the sake of this post, I am going to list different things that I think anyone should know about me and my EDS.
I am not capable of everything. I am not capable of doing the heavy lifting and sometimes it makes me feel useless. I do appreciate the help that you all give me but sometimes I want to try. Give me a chance to prove to myself whether I can or can not do it. Be my back up. Be there if I can’t do it and need the help.
Just because I say I can’t do something with you doesn’t mean I don’t like you. With Ehlers-Danlos Syndrome comes pain. We all know this. It is important for everyone to understand if I say I can’t do something it’s not because I don’t want to spend time with you. It means I’m hurting to bad or it’s dangerous for me to join you. I am very stubborn so I tend to do more than I should so if you hear me say I shouldn’t do it then it’s been past time for me to stop.
I like to talk about EDS. Shocker right? I mean I only blog about it. I love when people ask me questions. I want to help others understand. Sometimes I feel like people are afraid of hurting my feelings or upsetting me. I have kind of dealt with the shock of it all. I’m good. I am pretty much an open book at this point and I love when people get interested.
If I ask for help it’s serious. I do not like to ask for help, so when I do, know that it is serious. If I call for help or anything out of the ordinary, we have hit a problem. During dislocations and other situations the worst thing you can do for me is panic. I spend my time trying to calm you down, versus handling the situation.
Last but definitely not least.
The most important thing to remember is I’m still me. Just because I have this thing and I’m working through it doesn’t mean to treat me like I’m fragile. Believe it or not EDS has made me stronger. I just want to spend time with the people I love and not be treated like I may break with a slight gust of wind. (Even though that it probably possible.) I love to laugh and joke so just keep me smiling and I can handle anything.
Again, thank y’all for reading. I am so thankful for you guys.