Day 1: Introduce Yourself and What Type of EDS you have. 

If you saw my last post, then you already know I am going to start a 30 day EDS blogging challenge. Well here goes nothing… Today is day one.

Day 1: Introduce Yourself and What Type of EDS you have.

My name is Tori and I am 22 years old. I live in North Carolina and am currently going to school to become a Special Education teacher. Blogging isn’t something I usually do, or even considered doing but somehow I am here. I chose to share my story because I am a Ehlers-Danlos Syndrome survivor. I use the word survivor because I don’t like to think I am suffering from anything. I live with EDS hypermobility Type each and every second of my life but I am doing okay. Hypermobility means that I dislocate. I know it sounds gross, but it’s my normal. I like to think of it as a superpower. Doesn’t sound so super, but it is. My pain tolerance is incredible. Remember those signs in doctors offices that have a pain scale from 1-10 and the emojis that show happy to sad? Well your 10 is my (and other EDS survivors) 20. Pretty intense but it means we are strong enough to handle it. With EDS some days are good, some bad and some really bad. Everyday activities that most people wouldn’t ever consider as a challenge, can be gruesome. It’s a weird world I live in. I mean imagine a set of stairs. You probably think, “gosh, isn’t there an elevator?” but take them anyway or you may tackle the whole set without even noticing there were stairs there. Not me. I think about steps before I even leave my house. If friends of mine want to go somewhere and ask if I want to join, I contemplate the amount of walking, inclines, stairs, time spent standing, time spent sitting, what I have to do for the rest of the day, what I have to do tomorrow, and if all of these added together are worth the risk of an hour with a friend. It seems like a giant math problem, right? Good thing I like math. It’s a weird life but I am enjoying it.

One thought on “Day 1: Introduce Yourself and What Type of EDS you have. 

  1. Deddy says:

    So let me the 1st to comment! As your father, I can contest to the struggles you face everyday. I see the pain you live with. And yes you do have SUPER POWERS!! You are one of the strongest people I know. Yes, I am little bit conceded but it’s all true.

    You have been a fighter all your life. You have “walked it off” more times than we both care to remember. Keep fighting, Baby! And when all else fails, WALK IT OFF!!! I love you and happy you finally decided to do this blog! I look forward to reading your post!!!

    Liked by 1 person

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